The following websites include a range of professional organisations pertaining to porphyria, treatment, and laboratory practice related to metabolic investigations.
All links correct as of Summer 2021.
UK Porphyria Drug Database UK Porphyria Medicines Information Service Cardiff Porphyria Service Kings College Hospital Porphyria Service British Porphyria Association British Association of Dermatologists Association for Clinical Biochemistry and Laboratory Medicine European Porphyria Network Rare Connect Porphyria Recordati Rare Diseases American Porphyria Foundation The Swedish Porphyria Association
Link Disclaimer
The British and Irish Porphyria Network is not responsible for the contents or reliability of the linked websites and does not necessarily endorse the views expressed within them.
Listing shall not be taken as endorsement of any kind.
We cannot guarantee that these links will work all of the time and we have no control over the availability of linked pages.