Hello everyone, Please save the dates for the 2024 BPA and BIPNET meetings: Location: Dublin. Further details will be shared in due course but it would be great to see as many of you there as possible Best wishesVickyOn behalf of BIPNET and the BPA
News
News
International Porphyria Symposium 2023
The International Porphyrias Symposium 2023 which is being organised by the United Porphyrias Association, Porphyrias Consortium and American Porphyrias Expert Collaborative and will be held in Bethesda, Maryland USA from 26-29th October. The early registration and abstract deadline is 1st September. More detail about the symposium agenda and patient day is available on their website: …
Annual Education Meeting – 5th June 2023 – Final programme now available
Please see the attached for a FINAL outline of the 5th June meeting programme.
Last call for registrations – Annual Education Meeting (June 23)
Thank you to those of you who have already registered to attend the annual BIPNET meeting on Monday 5th June in Tamworth. Could we encourage anyone else wishing to attend to please register using the Eventbrite link sent out in the group email. before 19th May. Please note that the day will now likely run …
Annual Education Meeting – 5th June 2023
BIPNET are excited to confirm the date for the 2023 annual BIPNET education meeting as Monday 5th June. The event will be held in person and in collaboration with the BPA reconnect meeting on Saturday 3rd and Sunday 4th June at the Snowdome in Tamworth. Attendees can register using the ‘Eventbrite’ link in the recent …
Annual Education day – Registration now open
Ahead of the BIPNET annual education day on Monday 16 th May, please could we ask that you register your (free) attendance using the Eventbrite link sent out in the group email. Further information on the event can be found here: You will have the option to select virtual or in-person attendance as part of the …
BIPNET 2022 Meeting – May 16th – programme available.
The draft programme is now available here for the upcoming BIPNET annual education day. The event will be hosted here in Dundee as a hybrid in person/virtual meeting for those unable to attend in person on Monday 16th May. There are still a couple of slots to be confirmed, and we would appreciate it if …
Thank you to Bob and Penny!
A huge ‘Thank You’ to Bob Sarkany and Penny Stein who have just stepped down from the co-chair role of BIPNET, after 3 very busy and productive years. Vicky McGuire and Robert Dawe have kindly agreed to take over, and BIPNET wishes them the best of luck for the future.
British Porphyria Association ‘BPA Connect 2021’ event
The BPA Connect conference is an event allowing clinicians and individuals with a connection to Porphyria to meet and learn about the latest developments and treatments. The 2021 connect will be an on-line ‘virtual’ event with presentations and interactive panel discussions with expert specialists from the UK and oversees, followed by discussion breakout rooms Events …
Welcome to our new website!
We appreciate your patience but Version 1 of our new website is now live. A lot of the functionality has been copied across to this new website with a change in overall appearance. With time we will upload user videos and other content to help improve our functionality further. As with all big changes to …