BIPNET 2025 at the National Museum Cardiff

Save the date for BIPNET 2025

Please save the date for BIPNET 2025. This will take place on 28 and 29 March 2025 at the National Museum Cardiff. The museum is located in a leafy part of the city centre walking distance from Cardiff Central and Queen street train station, Cardiff Castle and Bute Park.  As it’s a city centre location …

International Porphyria Symposium 2023

The International Porphyrias Symposium 2023 which is being organised by the United Porphyrias Association, Porphyrias Consortium and American Porphyrias Expert Collaborative and will be held in Bethesda, Maryland USA from 26-29th October. The early registration and abstract deadline is 1st September. More detail about the symposium agenda and patient day is available on their website: …

Annual Education Meeting – 5th June 2023

BIPNET are excited to confirm the date for the 2023 annual BIPNET education meeting as Monday 5th June. The event will be held in person and in collaboration with the BPA reconnect meeting on Saturday 3rd and Sunday 4th June at the Snowdome in Tamworth. Attendees can register using the ‘Eventbrite’ link in the recent …

Thank you to Bob and Penny!

A huge ‘Thank You’ to Bob Sarkany and Penny Stein who have just stepped down from the co-chair role of BIPNET, after 3 very busy and productive years. Vicky McGuire and Robert Dawe have kindly agreed to take over, and BIPNET wishes them the best of luck for the future.

British Porphyria Association ‘BPA Connect 2021’ event

The BPA Connect conference is an event allowing clinicians and individuals with a connection to Porphyria to meet and learn about the latest developments and treatments. The 2021 connect will be an on-line ‘virtual’ event with presentations and interactive panel discussions with expert specialists from the UK and oversees, followed by discussion breakout rooms Events …